Benjamin has his well-baby 6 month appointment yesterday. Overall he is doing good!
His weight is 13.3 pounds which falls slightly under the mean for Achondroplasia (dwarfism). Our doctor said he would like to see us increase his solids (we literally just started a few days ago and Ben still isn’t too sure about it), but I am not going to get hung up on him being slightly under. He’s a chunky little monkey and thriving.
His height is 23.5 inches and is slightly above the mean for Achondroplasia. It’s hard not to be as worried about this measurement. Sure, we know he will be short, but it’s like every inch, maybe even every half inch, counts. The taller he is the more he can reach, the more likely a car backing out will see him, the easier it will be for him to figure out ways to do things that won’t come easy for him that you and I take for granted. I also know that for all the worrying I do, Ben will figure things out no problem and make it all look like I was being super ridiculous and I’m more than okay with that.
His head circumference is 47.5cm. Off the charts for an average sized 6 month old, but has also been following close to the mean for Achondroplasia. Our geneticist told us during our first consult that whatever slows down the growth of the long bones speeds up the growth of the head. Benjamin will literally have a bigger brain than you or I, but not necessarily be any smarter.
Our pediatrician has never treated a child with dwarfism before and sometimes it shows. It really does seem like he tries to get as much information as he can for the most part, but at this visit he asked if Ben has been doing physical therapy. I explained to him that our geneticist has said absolutely no physical therapy. I have seen through social media other families of children with Achondroplasia doing physical therapy. I am not saying our doctor is right or wrong. I can’t even really remember if he stressed no physical therapy because it might do more harm than good, or if it is simply because it won’t do anything. We trust our doctor, who is regarded as one of the top doctors in this field, and have chosen to not do physical therapy, but each family has to make decisions based upon what they believe is right or wrong.
Overall our Benjamin is doing great. We spread out his vaccinations so we have two more appointments this month for those, and then in January we will go back to A.I. DuPont’s Children’s Hospital for sleep study #2. His first sleep study came back with some partial obstructive sleep apnea, but we have since stopped the oxygen at night (we still have it on hand) because he sleeps silently and doesn’t ever seem like he’s struggling for air, pending the results of this next study.
We know he’s still very young and there is still potential for problems to arise, but at this moment we are very grateful for his health! If you would like to read more about Benjamin’s progress, see the Achondroplasia category on the right sidebar of this page. For more information regarding Achondroplasia in general, feel free to visit our Achondroplasia page.